Last month I introduced Senate Resolution 166, declaring August as Spinal Muscular Atrophy (SMA) Awareness Month in Michigan.
SMA is a genetic disease that causes degeneration in voluntary muscle movement for those impacted by the disease, eventually affecting the ability to walk, sit, crawl, stand, breathe, eat, and swallow. Sadly, SMA kills more children than any other genetic disease.
There is currently no treatment and no cure for SMA, but the National Institutes of Health selected SMA as the disease closest to treatment of more than 600 neurological disorders. The nation’s leading researchers agree that, with adequate resources, a viable treatment or cure is attainable in as little as five years.
Hopefully increased awareness of SMA will lead to increased knowledge and increased support for both disease research and families affected by the disease.
More information about SMA is available here: http://www.ninds.nih.gov/disorders/sma/sma.htm#Organizations
You can learn more about Brooke and Brielle’s story here: www.brookeandbrielle.com